About Action Duchenne
Our charity has a simple vision that encompasses everything we do: a world where lives are no longer limited by Duchenne muscular dystrophy.
Our key values that address those limits:
- funding research to identify and advance potential therapeutic strategies for everybody living with Duchenne, and support clinical trials and the staff and infrastructure required to bring trials to the UK.
- campaigning for the NHS to provide their patients with the earliest possible access to medicines that have been approved for the treatment of Duchenne.
- striving to create an inclusive society where everybody is equal, where disability is accepted and is no longer a barrier in accessing transport and other facilities.
- building a community for all those affected by Duchenne - to bring people together to share their experiences and to raise the profile of the condition.
Action Duchenne in short
Up to 1000 people