About Action Duchenne
Our charity has a simple vision that encompasses everything we do: a world where lives are no longer limited by Duchenne muscular dystrophy.
Our key values that address those limits:
- funding research to identify and advance potential therapeutic strategies for everybody living with Duchenne, and support clinical trials and the staff and infrastructure required to bring trials to the UK.
- campaigning for the NHS to provide their patients with the earliest possible access to medicines that have been approved for the treatment of Duchenne.
- striving to create an inclusive society where everybody is equal, where disability is accepted and is no longer a barrier in accessing transport and other facilities.
- building a community for all those affected by Duchenne - to bring people together to share their experiences and to raise the profile of the condition.
Action Duchenne in short
Conference location
Up to 1000 people
Services
Participant registration
Programme coordination
Our location
